Primary bone cancer is a rare type of cancer that starts in the bones, unlike secondary bone cancer which spreads to the bones from another part of the body. Osteosarcoma and Ewing’s sarcoma are the most common types of primary bone cancer in young people. Osteosarcoma is most common, affecting teenagers and young adults more than any other age group, and is most commonly found in the lower thigh, the shin bone and the upper arm. Ewing’s sarcoma is also most commonly found in teenagers and usually starts in the pelvis, thigh or shin.

The following sites provide useful further information about primary bone cancer and the support available.

CLIC Sargent

CLIC Sargent nurses refer children with primary bone cancer to us for grants. CLIC Sargent is the UK’s leading cancer charity for children and provides specialist support across the UK. 

Macmillan Cancer Support

Macmillan aims to improve the lives of those with cancer, providing support throughout the treatment process.


The Willow Foundation provide special days for seriously ill young adults aged 16-40. 

Sarcoma UK

Sarcoma UK aims to increase awareness of sarcoma and fund ground-breaking research. They promote early diagnosis and the improvement of the patient experience. They also offer a national support line.

The Dragonfly Charitable Trust

The Dragonfly Charitable Trust helps young cancer patients and their families to create precious and lasting memories. 

Bone Cancer Research Trust

The BCRT is dedicated to fighting primary bone cancer through research, aiming for a future where it is cured. They provide high-quality information and a supportive network.